Urology treats urinary tract diseases in all genders and male reproductive issues, covering the kidneys, bladder, prostate, urethra, from infections to complex cancers.
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Neurogenic bladder is rarely “cured” in the usual sense; it is managed over time. Recovery means keeping kidney function, staying continent in social situations, and avoiding infections. Following up regularly is the most important factor for long-term health. Patients need to know that “feeling fine” does not always mean the bladder is safe, since high pressure can cause silent damage.
Bladder Stones. Because the bladder may not empty or contain mucus (from augmentation), stones can form on catheter tips or mucus plugs can form. These act as a nidus for infection. They are treated endoscopically (cystolitholapaxy). Prevention involves high fluid intake and regular irrigation.
Latex Allergy Patients with Spina Bifida and SCI have a very high rate of latex allergy due to chronic exposure to medical products early in life. Liv Hospital maintains a strictly Latex-Free environment for these patients to prevent anaphylaxis.
Lifestyle and Coping
A critical phase in neurogenic bladder care (specifically for Spina Bifida) is the transition from pediatric to adult urology. This usually occurs between ages 16 and 18. This period is high-risk for “loss to follow-up” and subsequent renal failure. Liv Hospital employs a structured Transition Program to ensure young adults take ownership of their bladder management, catheterization supplies, and appointment scheduling before leaving the pediatric service.
The psychological burden of incontinence, dependence on catheters, and altered body image is heavy. Depression rates are higher in this population. Liv Hospital integrates psychological support, helping patients adjust to their “new normal,” fostering independence, and addressing body image concerns regarding sexuality and catheterization. Caregiver burden also involves providing resources and respite strategies for family members who are assisting with care.
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Since you may not feel “burning on urination,” look for other signs: fever, chills, cloudy or foul-smelling urine, frank blood in urine, sudden increase in muscle spasms (spasticity) in the legs, or the onset of Autonomic Dysreflexia episodes. “Feeling generally unwell” or confused is often the only sign in elderly or high-level injury patients.
The key is to empty the bladder (no residual urine) frequently. If you have an augmented bladder (bowel patch), you must irrigate (flush) the bladder with saline daily to wash out mucus, as mucus clumps can serve as seeds for stones to grow on. Drinking plenty of water also helps dilute the minerals.
Yes. Women with neurogenic bladder can conceive and carry a pregnancy. However, pregnancy increases the risk of UTIs and hydronephrosis. Catheterization may become difficult as the belly grows. Kidney function must be monitored closely. A C-section might be planned to avoid pelvic floor trauma. Men may require sperm retrieval techniques (vibrostimulation or electroejaculation) if they have retrograde ejaculation or anejaculation.
Because kidney damage from neurogenic bladder is “silent.” You will not feel pain if your kidneys swell (hydronephrosis) due to high bladder pressure. By the time you feel sick (nausea, lethargy), the kidneys may have failed irreversibly. The annual ultrasound is your early warning system to catch damage while it is still reversible.
Cranberry extracts (specifically D-Mannose) may help prevent E. coli bacteria from sticking to the bladder wall, potentially reducing UTI frequency. They are generally safe but should not replace proper catheterization technique or medical treatment for active infections. Discuss with your doctor, as high doses can interact with blood thinners (Warfarin) or increase the risk of specific kidney stones (oxalate).
Many people struggle with using catheters. Finding other ways to empty the bladder is key. This is true for those with medical conditions that make
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